Celine Dion insisted on sharing ‘upsetting’ footage of seizure in doc amid stiff person syndrome battle

Celine Dion, 56, insisted on showing footage of herself struggling a seizure in her new documentary, “I Am: Celine Dion.” 

The “My Heart Will Go On” singer, who suffers from a exceptional neurological disorder named stiff man or woman syndrome that has interfered with her skill to sing, is demonstrated obtaining a bodily therapy session in 2022. 

On a massage table, she appears convulsing and writhing in agony, moaning in agony, as medical workers tend to her. 

A gentleman then asks her, “Do you want us to get out the cameras?” 

But the Grammy-winning singer is revealed mouthing “I’m Ok.”

The documentary’s director, Irene Taylor, told Yahoo that Dion “didn’t want me to modify anything” after seeing that footage. 

“Her therapist observed the [medical] episode coming on, and within 30 seconds there was no going again. We just responded as speedily as we could. We genuinely could not go from that corner of the place. I was keeping a microphone [and used it] to gauge if she was breathing or not,” Taylor spelled out. 

She included, “It was very upsetting. Incredibly upsetting. I know it’s challenging on some viewers, it was tough on me too. But I will explain to you that Celine felt validated to see herself like that and she imagined it would enable her if other people could have an understanding of what [SPS] is like.”

Onscreen, Dion tells the digicam: “Everytime one thing like this happens it would make you experience so embarrassed and so, like, I don’t how to specific it, it is just… you know, like to not have control of yourself…”

She additional that she has not given up dreams about her occupation. 

“I nevertheless see myself dance and sing. I generally locate strategy b and plan c, you know. That is me. If I simply cannot run, I’ll walk. If I just can’t stroll, I’ll crawl. But I won’t prevent. I won’t cease.”

Dion’s ailment has caused her to withdraw from the general public eye, though she’s produced some temporary appearances, like attending the 2024 Grammys and the premiere of her doc previously this thirty day period. 

The director instructed Yahoo that she and Dion “never had a conversation” ahead of filming about what they would do if Dion had a wellness challenge in entrance of the cameras.

“I definitely thought it was so unlikely, it was not even a conversation we necessary to have,” Taylor reported, incorporating that “months may go by” devoid of Dion obtaining an incident. 

“If it does occur, [Celine] advised me above and around again, ‘Don’t request me permission to film, just maintain rolling and we can communicate about it later on.’” 

She stated that Dion watched the movie with the a few sons she shares with late partner René Angélil: René-Charles, 23, and 13-year-previous twins Nelson and Eddy.

“[Celine] applied the film essentially as a teaching tool with them so that she could show them the extent of how she feels about her scenario and the extent of what can take place to her body if she goes into an episode of stiff-individual syndrome,” Taylor said. 

“I Am: Celine Dion” hits Key Online video on June 25.